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Politicians agree to reform "archaic" fertility treatment funding model

Politicians agree to reform

Wednesday 01 May 2024

Politicians agree to reform "archaic" fertility treatment funding model

Wednesday 01 May 2024


A consultation is set to be launched on what changes to make to the “archaic” funding model for fertility treatment after politicians backed an amended proposition to replace the current means-tested system.

Deputy Lucy Stephenson, who has personal experience with infertility and is a founding governor of fertility support charity Tiny Seeds, lodged a proposal in early April to reform existing funding, arguing that the current arrangement was "outdated".

In her proposition, she said the threshold for IVF funding was set at such a low level at £40,795 that no one had ever qualified for it.

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Pictured: Deputy Lucy Stephenson has personal experience with infertility and IVF treatment.

Deputy Stephenson instead said the island should adopt UK clinical guidelines from the National Institute for Health and Care Excellence (NICE), which currently recommends funding three full cycles of IVF for women under 40, or one full cycle for those aged 40–42.

During the debate yesterday, she cited recent statistics from the Births and Breastfeeding Profile report that showed that the proportion of women having a baby in their 20s has nearly halved in recent years.

But States Members instead backed an amendment to her proposition lodged by Health Minister Tom Binet by 28 to 15.

“The amendment is realistic"

Deputy Binet's amendment said that new criteria related to financial support for IVF treatment should be developed in consultation before any changes to the funding model are made.

However, he indicated his support for replacing the means-tested model within his amendment.

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Pictured: Health Minister Tom Binet emphasised the need for careful consideration before committing to funding IVF services aligned with NICE guidelines.

Deputy Binet said: "In so doing, we will ensure that any IVF service funded by the government accords with good clinical standards, even if it does not provide up to three publicly funded IVF cycles for all people."

Deputy Binet added that this would help manage costs, with the Health Department currently facing an £18m shortfall.

"I found Deputy Stephenson's augments extremely compelling and I would love to support the proposition un-amended," he said.

“The amendment is realistic."

His arguments were supported by Deputies Moz Scott and Barbara Ward, who stressed the importance of ensuring balanced books.

"We need to ensure we live within our means and don't compound this overspend," Deputy Ward said.

A "lesser service" for patients

Deputy Stephenson raised concerns that the Health Minister's amendments to her proposition will result in a "reduced offer for patients".

This was echoed by Deputy Jonathan Renouf who also felt the amendment would lead to a “lesser service” for patients. 

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Pictured: Some islanders have admitted having to sacrifice their mortgage deposits to generate IVF funds during the cost-of-living crisis.

Meanwhile, former Health Minister Deputy Karen Wilson said the amendment introduces "rationing" into the debate and "does nothing to improve outcomes".

Deputy Louise Doublet added: "We should support those who experience infertility and want to have children and remove any barriers we can.

"The financial overspends in the health service will get much, much worse if we do not have a working population to support the health service."

"Re-inventing the wheel"

Deputy Stephenson also questioned why the government wanted to "create more work for itself" by creating its own guidance instead of following NICE guidelines.

"There is no need for further delays, especially where every month does count for those needing treatment," she said.

“It does feel like we are trying to re-invent the wheel and I question why.”

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Pictured: Deputy Lucy Stephenson called on the government to align the IVF funding model with clinical guidelines used in the UK.

Deputy Hilary Jeune agreed, stating that it was unclear how the island would develop its own “good clinical standards” given the recent performance of the department that has not been “up to scratch”. 

Deputy Miles pointed to recent critical reports on local clinical standards, specifically in the Maternity and Rheumatology Department, which identified that prescribing  was outside any of the national and international guidance available, including NICE

She argued Jersey should adopt NICE's “national best practice".  

“We don’t want to become another NHS"

Chief Minister Lyndon Farnham said he was also in favour of removing the "archaic" means-tested model – but said that Deputy Binet's amendment would not delay the proposal.

“The amendment commits to the same timeline as the proposition and we will ensure funding is included within the next Government Plan that will be lodged in July,” he said. 

“We don’t want to become another NHS and we want to be able to choose and create our own rules that are right for Jersey. That is all that is behind the amendment.” 

Deputy Rob Ward pointed to the fact that both the amendment and the main proposition were trying to remove the current funding model of means testing.

He also refuted the argument about the amendment causing delays, saying that the funding will be in the same cycle of the government plan.

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Pictured: Deputy Stephenson's proposition (left) compared to Deputy Binet's amendment (right).

Members supported the amended proposition by 44 to one (Deputy Karen Wilson), with Deputy Tom Coles, who had a conflict of interest, abstaining.

How did the debate play out?

Overall, the debate revolved around whether to follow NICE guidelines or develop Jersey-specific guidance for funding IVF treatment.

Opponents of Deputy Binet's amendment were concerned about compromises in patient care, while his supporters spoke about the budget limitations facing the Health department.

For the amendment:

  • Deputy Tom Binet supported replacing the means-tested model but advocated for careful consideration and Jersey-specific access criteria before implementing changes.
  • Deputy Moz Scott, who mentioned that she herself had "trouble conceiving", said that she would support the amendment.
  • Deputy Barbara Ward supported improving IVF funding but stressed the importance of ensuring balanced books. "We need to ensure we live within our means and don't compound this overspend," she said.
  • Deputies Montfort Tadier and Philip Balliache both argued that instead of adhering strictly to UK guidelines, Jersey should create its own guidance, which they said would be more flexible and inclusive. They argued that Jersey could develop guidelines that are more accommodating and do not impose strict eligibility criteria for fertility treatment, such as restrictions based on smoking status, parenthood, or weight as is in the case in Scotland.
  • Chief Minister Lyndon Farnham said he was also in favour of removing the "archaic" means-tested model and said the amendment would not delay the proposal.
  • Deputy Rob Ward pointed to the fact that both the amendment and the main proposition were trying to remove the current funding model of means testing. He also refuted the argument about the amendment causing delay, saying that the funding will be in the same cycle of the government plan.

Against the amendment:

  • Deputy Lucy Stephenson argued that the amendment would lead to a reduced offer for patients and questioned the need for new guidelines.
  • Deputy Jonathan Renouf also felt the amendment would lead to a "lesser service" offering than the original proposition.
  • St Martin Connétable Karen Sheton Stone, who campaigned for the Assist Reproduction Unit that opened in the 1990s, also spoke about her personal experience with infertility treatment in a maternity ward and emphasised the importance of accessible care.
  • Deputy Louise Doublet said: "We should support those who experience infertility and want to have children and remove any barriers we can...The financial overspending in the health service will get much much worse if we do not have a working population to support the health service."
  • Deputy Hilary Jeune, asking Members to listen to the experiences of those with infertility issues, said it was unclear how the island would develop its own "good clinical standards", especially given the recent performance of the department that has not been "up to scratch".
  • Deputy Helen Miles also highlighted recent critical reports on clinical standards in terms of the Rheumatology and Maternity Department and recommended adherence to NICE guidelines — which she described as "national best practice that is frequently under review".
  • Former Health Minister Deputy Karen Wilson said the amendment introduces "rationing" into the debate and "does nothing to improve outcomes."

READ MORE...

Concern that IVF proposition amendments will result in "reduced offer for patients"

Politician pushes for better funding to support fertility treatment

"I sold my flat to be able to afford fertility treatment"

Fertility risk as Jersey families 'delay children due to cost of living'

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