As Jersey marks Autism Acceptance Month this April, islanders are speaking out about the need for greater recognition, everyday accommodations and a shift in public understanding of autism in the face of persistent misconceptions.
The annual campaign, led locally by Autism Jersey, aims to promote awareness, acceptance and inclusion, encouraging people across the island to reflect on how society can better support autistic individuals.
Lesley Harrison, from the charity, said the month is about celebrating the uniqueness of autistic individuals, promoting inclusive practices, and educating the public about the challenges and strengths.
“It is a time for our small community to come together in support of individuals, their families and carers, advocating for acceptance and equal opportunities,” she added.
Central to that message are the voices of autistic islanders themselves, many of whom say that small, practical changes – and a willingness to listen – can make a significant difference.
“I’ve been told ‘you really don’t look autistic though’ on numerous occasions”
Artist Emilie Knight, who was diagnosed at the age of 36, said understanding autism has enabled her to better advocate for her needs, but misconceptions remain a barrier.
“I’ve been told, ‘you really don’t look autistic though’ on numerous occasions,” she said.
“I understand it’s meant kindly, but it suggests that being autistic is something negative – something to be ashamed of.”
She feels strongly that more recognition is needed for people diagnosed later in life – particularly women.
“Women are still missing out at every stage of the process,” she said.
“There are so many misconceptions around how autism presents in women, which means it’s often more difficult to get a diagnosis in the first place.”
She also highlighted gaps in support.
“There’s a lot of information available for parents of autistic children, but not much out there for late-diagnosed adults,” she said.
When it comes to challenging stereotypes, Emilie emphasised that autism is not a one-size-fits-all experience.
“I always say this is my personal experience – all autistic people experience autism differently,” she explained.
Emilie sees Autism Awareness Month as an opportunity to reach new audiences and spark understanding.
“It offers the chance to raise awareness in a more public way,” she said. “Often, these conversations are only available to those who actively seek them out.”
But she believes greater awareness must be matched with action.
“Sometimes it only takes very small adjustments to accommodate someone’s neurodiversity,” she said.
“Ask how you can accommodate someone, and never assume.”
“From the day of my diagnosis and every day since, people have questioned my diagnosis”
Ciara Mooney, an administrator at Autism Jersey, echoes that call, stressing that autism cannot be understood through stereotypes or appearances.
“Autism is a hidden disability. You cannot see it, smell it, touch it or hear it,” she said.
“You will not know what my autistic traits are by looking at me or talking to me.”
Diagnosed at 35 years old, Ciara said public misunderstanding often leads to dismissive or hurtful comments.
“‘You don’t look autistic’, ‘but you’re the good kind of autistic’ – these things are hurtful and insulting,” she said.
“From the day of my diagnosis and every day since, people have and will question my diagnosis. This is due to a lack of understanding.”
She also highlighted the impact of “masking” – where autistic people feel pressure to hide their traits to fit in socially.
“Masking is creating a version of yourself that is socially acceptable,” she explained. “It is exhausting and can be hugely detrimental to your mental health as it strips away your identity.”
Instead, Ciara is urging islanders to engage directly and respectfully.
“Let go of the stereotypes, myths and fake news surrounding autism; instead, ask an autistic person about their experience,” she said.
“Be kind, be patient, ask questions and most importantly, be clear with your communication.”
“It is not a disease that can be cured. Our brains are just wired differently”
For Steven Philip Ozouf, whose autism went unrecognised during childhood, the consequences of misunderstanding were long lasting.
“I felt like I did not fit in this world at the time,” he said. “Luckily, I had great support. Without support and encouragement, my life may have taken a turn for the worse.”
Now diagnosed, he said greater awareness of sensory needs and differences is essential.
“Smells and taste play a significant role in my life, and lighting and noises affect me as well,” he said, noting that tools such as noise-cancelling headphones can help manage everyday environments.
Steven also emphasised the importance of recognising autism as part of identity.
“I am autistic and don’t refer to myself as someone with autism, as it is not a disease that can be cured. It is us. Our brains are just wired differently,” he said.